Our mission is to : 9News: pm Jun 25, 2017 Meet the girls with Albinism shaking up social media Two Geelong girls with albinism are using the power of social media to raise awareness of the little-known congenital disorder.
24-year-old Leonidah stood out from the moment she was born.
The AFA’s key purpose is to provide support, education and fellowship to those with albinism, parents of children with albinism as well as their families and friends.
Those living with albinism in South Africa and nearby countries have been subjected to extreme prejudice and acts of violence.Participants include representatives of Mozambique, Malawi and Tanzania’s counter-trafficking coordination bodies, prosecutors, criminal investigation police, national human rights institutions, NGOs concerned with the protection of people with albinism and traditional healers.“This will in turn prevent and address disappearance of children, abandonment or assist in investigations when children with albinism are affected."I find difference very inspiring." When Dingwall met Thando Hopa, a South African model with albinism, he was immediately enthralled by her unconventional beauty.One in 4,000 people in South Africa has albinism, a congenital condition in which a person is unable to produce the typical pigmentation of skin, hair and eyes.In 2008, after 50 individuals with albinism were killed in Tanzania, the UN declared the population "persons with disabilities." But when Dingwall met Hopa, he saw not a disability but a gift.